Application of different medical treatment and aggressive surgeries try to prolong the life expectancy of the Cholangiocarcinoma patients, but live saving treatments seem to be a distant dream yet. 71% of the patients had hilar tumor (Klatskin), 23% distal and 6% intrahepatic CCA (IH). Liver Int. Editors Note: This piece was submitted by a contributing writer and does not represent the views of CURE Media Group. For example, in northeast Thailand, cholangiocarcinoma occurs in about 110 per 100,000 people. I hope to make 10 years someday, and more! sharing sensitive information, make sure youre on a federal I grew up in the northeast Ohio area and currently live in Mansfield with my husband, Troy. Surgery for cholangiocarcinoma. Patients who underwent repeat surgery had a lower proportion of lymph node metastases (n = 0 [0%] vs. n = 47 [50.5%], p < 0.001), multiple tumors in the primary tumor (n = 1 [6.7%] vs. n = 31 [33.3%], p = 0.037), or early recurrence ( 1 year; n = 4 [26.7%] vs. n = 62 [66.7%], p = 0.003). Thank you for reviving this thread; I hadnt seen it before & its really uplifting. Each anatomic subtype has distinct genetic. She talks about cholangiocarcinoma at every opportunity. * To protect your identity do not use your full name. An official website of the United States government. Viewing 15 posts - 1 through 15 (of 25 total), This topic has 24 replies, 19 voices, and was last updated. She and we are devastated. I just dont think enough is known that no hope is possible. I refused to give up and had chemotherapy on and off for 2 years now. This time I thought, Okay God, I'm really done now, right? Failed effort at resection in Sept. 2008. I have had a good two years. Hes never been a drinker, likes running and he looked like a young fit guy before he started his chemo. If the cancer is diagnosed at an early stage, the 5-year survival rate is 25%. Definitive guidelines for recurrent intrahepatic cholangiocarcinoma (ICC) do not exist. Now the emotional turmoil on the other hand there is a whole other topic. The 1-year overall survival was 22.3 +/- 4.4% and the 2-year survival was 3.4 +/- 2.1%. I am so thankful for the clinical trial of Adoptive Cell Therapy with Dr. Rosenberg which has extended my life hopefully for many years to come! Perhaps theres something in the water. This is great. Single fraction carbon ion radiotherapy for colorectal cancer liver metastasis: A dose escalation study. He has been through 7 surgeries and 2 1/2 months of chemotherapy. Epub 2019 Mar 7. Cancers (Basel). However, T1 ICC usually occurs distant metastasis (DM), and the clinical features of these patients could help clinicians identify the high-risk population. I went on Pemayre in June of 2020 and I had a partial response on my first scan. Li Q, Zhang J, Chen C, Song T, Qiu Y, Mao X, Wu H, He Y, Cheng Z, Zhai W, Li J, Zhang D, Geng Z, Tang Z. I wanted my children to have a normal life, and I didnt want them to worry on a daily basis if their mother was going to live or die. In conclusion, CIRT is a potential treatment option to control solitary recurrence of biliary tract cancer. Please enable it to take advantage of the complete set of features! Long-Term Survivor Stories - Ellyn Goodrich By Cholangiocarcinoma Foundation | November 16, 2021 MY STORY I am a patient and an advocate, but first, I am a mother to three amazing sons. In the beginning, my husband taught me to thank God for today, and to ask Him for tomorrow. 2009 Nov;24(11):1745-52. doi: 10.1111/j.1440-1746.2009.05915.x. I had my second surgery removing 35 percent of my liver during an eight-and-a-half hour surgery, followed up by another six months of chemotherapy. 2013;258:129140. Surgery. Not much energy but still functioning. N Engl J Med. FOIA Of these, 15 patients underwent repeat surgery and 93 did not. I truly love my new normal, and I love that I can make an impact by providing compassion, love, hope and prayers for others. Palliative treatment with self-expandable metallic stents in patients with advanced type III or IV hilar cholangiocarcinoma: a percutaneous versus endoscopic approach. Frequency 2023 Cholangiocarcinoma Foundation - All Rights Reserved - Disclaimer, Language, Translation & Accessibility Options, Staging Perihilar Extrahepatic Cholangiocarcinoma, Staging Distal Extrahepatic Cholangiocarcinoma, Understanding Your Clinical Trial Results. Its reassuring to know people are living longer than the prognosis we were given. Selective Internal Radiation Combined with Chemotherapy Maintains the Quality of Life in Intrahepatic Cholangiocarcinomas. I am trying to think back to D-Day, and it is all a bit of a blur. In most patients, the tumor cannot be completely removed with surgery and is incurable. What Are the Best PsA Treatments for You? Use the menu to choose a different section to read in this guide. Bookshelf Just wanted to dig up this old topic and put it out there again, remain positive, Pat, Jeans post would be great in survivor section. 2010 Apr 8;362(14):1273-81 were excluded, as were case reports/series of <10 patients. Disclaimer, National Library of Medicine Please enable it to take advantage of the complete set of features! After surgery and hearing the ICC diagnosis, it took me several weeks to pronounce it and I had to look up how to spell it on each form I filled out as I was searching for an oncologist. When he asked me a second time, I repeated myself. 1,3 At the same time, long-term survival of patients with unresectable ICC is dismal, with less than 5% to 10% of the . Hi Janet, a lot of people go way back when searching for some answers from other patients and Care Givers. I dont expect to be a longterm survivor but I have already survived two edcuated guess prognoses. The estimate comes from annual data based on the number of people with this cancer in the United States. Im from Glastonbury, CT, originally from Hartford, CT. Im a retired public elementary school teacher with more than 30 years of teaching experience. The mortality rate of HCC-CC was 79.2% (HCC, 77.5%; CC, 93.5%) and the local recurrence rate of HCC-CC was 65.3% (HCC, 74.6%; CC, 88.4%). External-beam radiotherapy (50.4 Gy) was performed, and the tumor's size decreased to 6.3 cm in diameter. Disclaimer, National Library of Medicine How much time do we hve ?? Endoscopic biliary decompression improved the QoL faster than surgery. He just had some pain and pressure that lead to it being identified. Cholangiocarcinoma (bile duct cancer) is a rare cancer that occurs when cells in a bile duct grow abnormally and out of control. 2004 May;24(2):177-87. doi: 10.1055/s-2004-828894. The sharing on this site is what helps to make it the best site there is for CC. A Nomogram Model to Predict Early Recurrence of Patients With Intrahepatic Cholangiocarcinoma for Adjuvant Chemotherapy Guidance: A Multi-Institutional Analysis. Would you like email updates of new search results? 2019;39 (Suppl 1):S143S155. Our family started Craine's Cholangiocarcinoma Crew, a 501c3 that raises funds for research on bile duct cancers. Epub 2009 Sep 25. The researchers calculated that the overall median survival of patients with primary ITP was reduced by 5.1 years while that of patients with secondary disease was reduced by 11.1 years compared to the general population. and transmitted securely. This study has focused on the repeat surgery when analyzing the survival outcomes of recurrent ICC. I was diagnosed with stage 4 intrahepatic cholangiocarcinoma in 2010, and I was given six months to live. | Find, read and cite all the research you . I had that off-island, in America, and went back to Virginia Mason in Seattle where I had my resection. 2023 MJH Life Sciences and CURE - Oncology & Cancer News for Patients & Caregivers. Souche R, Addeo P, Oussoultzoglou E, Herrero A, Rosso E, Navarro F, Fabre JM, Bachellier P. Am J Surg. Andrianello et al. Trusting my team brings hope and staying informed does as well. Endoscopic palliative therapy allowed a faster community reintegration, but with variable evolution. Healing needs to be physical, spiritual and mental. Survival after recurrence (SAR) was better in patients who underwent repeat surgery than in those who did not (median SAR time: 91.6 vs. 10.4 months, and 3-year survival: 86.7 vs. 8.7%, respectively, p < 0.001). Intrahepatic cholangiocarcinoma may be associated with chronic ulcerative colitis and chronic cholecystitis. Siddiqui D, Ferreira R, Khan SN, Narwade N, Mhase S, Pashine AA, Nimje AM, Umate R. Cureus. I was diagnosed with stage 4 non operable Cholangiocarcinoma in Sept 2017. It sounds stupid, but I really do believe in the power of hope, and messages like this really raise the bar. eCollection 2022. This opened up the world of clinical trials and I was on the Fight 202 trial for 14 months. When the mass on my arm was biopsied, the results revealed just how rare my cancer was. Use the menu to see other pages. The median survival in patients with ciated human intrahepatic cholangiocarcinoma. I itched everywhere my arms, my legs, my hands, my feet, my chest. It would wake me in the middle of the night,, Heidi Rhea is a long-term survivor. This site needs JavaScript to work properly. I didn't have time for cancer, but as we all know it doesn't take applications. Again, knowledge is power and that translates to hope in my mind. It is only accessible by boat or plane, and it does not have any traffic lights. Physically he is well , and other than tiredness from chemo there is no pain or nausea and leads a functional life. We did not end up with clear margins. PDF New Techniques of Resection and Long- Term Survival for . See Additional Information. The objective of this observational study is to identify patients with locally advanced cholangiocarcinoma treated with nab-paclitaxel and gemcitabine-cisplatin chemotherapy. Unable to load your collection due to an error, Unable to load your delegates due to an error. Overall median and 5-year survival of resected patients were 37 months and 43 %, respectively, as compared to 13 months and 7 % in unresectable patients. Currently hes awaiting results of scan to show if tumour has shrunk / slowed growth,,, but with his good blooods of late, Im onlyhopeful it is an improved resulttoo. What Is the Survival Rate of Cholangiocarcinoma? When they find a post, no matter how long ago, that answers their questions it is wonderful that they found such a helpful post. Discussion Board Forums General Discussion Long term survivor with cc. Front Oncol. We performed an extended left hemi-hepatectomy and caudate lobectomy with extrahepatic bile duct resection. Overall survival and local recurrence-free survival rates of HCC-CC were between HCC and CC rates. Heidi has always been a cancer advocate, especially with her family history of Lynch syndrome. If the cancer has spread to a distant part of the body, the 5-year survival rate is 2%. Ninety-five patients (40 %) underwent laparotomy, and in 57 (63 %) of these patients resection was performed. eCollection 2021. Just saw my GI doc today and he says Im doing remarkably well. With two daughters in college that were not too far off-major milestones and such. I think we can al reasonably have a bit of hope that so little is actually know about CC that so-called long-term survival is a possibility, statistically, for at least a few. Even just reality n not fictional words. HHS Vulnerability Disclosure, Help These symptoms are more likely to be caused by something other than cholangiocarcinoma. Heidi has been a Cholangiocarcinoma Foundation ambassador at health fairs,, Working out was something of a side-hustle for me the last three years. [10] -. 2010;362:12731281. Cisplatin plus gemcitabine versus gemcitabine for biliary tract cancer. Despite improvements in tumor diagnosis and surgical techniques, the long-term survival outcomes remain abysmal due to high rates of recurrence and metastasis [6, 7]. Long-standing inflammation, as with primary sclerosing cholangitis (PSC) or chronic parasitic infection, has been suggested to play a role by inducing hyperplasia, cellular proliferation, and, ultimately, malignant transformation. When symptoms of cholangiocarcinoma do occur, they may include: Cholangiocarcinoma is rare. The most important piece of advice I give patients is the minute your doctor take your hope away, find a new doctor. PMC It was not until the beginning of December, 2 months after we took him to hospital that Bile Duct cancer was first mentioned to us and the chemo was started. Cancer.Net GuideBile Duct Cancer (Cholangiocarcinoma). [ 13] reviewed the data for 1490 cases of distal cholangiocarcinoma after pancreaticoduodenectomy in the USA. FOIA Epub 2020 Aug 31. Cholangiocarcinoma is a rare bile duct cancer in the liver. -, Liver Cancer. 2012 May;3(3):161-9. doi: 10.6004/jadpro.2012.3.3.4. Will My HER2-Positive Breast Cancer Spread? I had a liver resection, and I was diagnosed with Intrahepatic Cholangiocarcinoma. The most common physical indications of cholangiocarcinoma are abnormal liver function tests, jaundice (yellowing of the eyes and skin occurring when bile ducts are blocked by tumor), abdominal pain (30-50%), generalized itching (66%), weight loss (30-50%), fever (up to 20%), and changes in the color of stool or urine. Comprehensive information for people with cancer, families, and caregivers, from the American Society of Clinical Oncology (ASCO), the voice of the world's oncology professionals. Live for the day is what we try to do but this proves difficult at times. Next, because this cancer is so rare, there was very little research and clinical trials. OUR WINES PMC The risk is highest among Hispanic Americans in the U.S. Worldwide it is more common in Southeast Asia and China, Exposure to thorium dioxide (Thorotrast), a radioactive contrast agent used for X-rays until the 1950s (it is no longer used), Other possible risk factors (though the links are not as clear), Exposure to radon or other radioactive chemicals, Exposure to dioxin, nitrosamines, or polychlorinated biphenyls (PCBs), Magnetic resonance cholangiopancreatography (MRCP), Endoscopic retrograde cholangiopancreatography (ERCP), Percutaneous transhepatic cholangiography (PTC), Resectable tumor (potentially curative surgery in cases where the tumor can be completely removed with wide margins; only a small portion of bile duct cancers are resectable when found), Removal of part of the liver (partial hepatectomy), Removal of a whole lobe (right or left part) of the liver (hepatic lobectomy), Removal of part of the liver, along with the bile duct, gallbladder, nearby, Removal of part of the pancreas and small intestine (Whipple procedure), Unresectable cancers (cancer is too advanced or cannot be fully removed through surgery), Palliative surgery to relieve symptoms or treat or prevent complications, Three-dimensional conformal radiation therapy (3D-CRT), Intensity-modulated radiation therapy (IMRT), Brachytherapy (internal radiation therapy), Fibroblast growth factor receptor (FGFR2) inhibitor: pemigatinib (Pemazyre), Drugs are being tested in clinical trials to see if they might help treat bile duct cancer, Palliative therapy to help control or reduce symptoms, Chemotherapy and radiation to relieve problems caused by the tumor(s), Surgery or other treatments to help patients feel better or to help prevent possible problems caused by the cancer, Tumor ablation (radiofrequency ablation or cryosurgery), Localized (no sign that the cancer has spread outside of the bile ducts): 24%, Regional (cancer has spread outside the bile ducts to nearby structures or lymph nodes): 7%, Distant (cancer has spread to distant parts of the body such as the, Localized (no sign that the cancer has spread outside of the bile ducts): 15%, Regional (cancer has spread outside the bile ducts to nearby structures or lymph nodes): 16%, The 5-year survival for these tumors at the regional stage is slightly better than for the localized stage, although the reason for this is not clear, Distant (cancer has spread to distant parts of the body such as the lungs): 6%. I enjoy woodworking, sailing, and water sports. I'm from Glastonbury, CT, or ig inally from Hartford, CT. I'm a retired public elementary school teacher with more than 30 years of teaching experience. She is 58. DUPAN-2, duke pancreatic monoclonal antigen type-2; CA19-9, carbohydrate antigen 19-9; GC, gemcitabine and cisplatin; CIRT, carbon ion radiotherapy; cCR, clinical complete response; Lt. Would you like email updates of new search results? How awful for you and your sister. Finally, I wanted to become a mentor for other people battling the same cancer. My treatment then turned to a type of radiation called SBRT and we used this treatment for several more recurrences. 1 Slightly longer survival was recorded when chemotherapy was added and also after endoscopic placement of metallic stents. An official website of the United States government. I was young and in good health aside from the 70% of the liver that he removed. Some will do it and it is critical for patients facing this to know even stage 3 patients can be long term survivors if you pour through the statistics, so there is cause to remain hopeful. Background/aims: Perihilar cholangiocarcinoma is a rare disease with unfavorable prognosis resulting in low survival rates. The present report describes the long-term survival of a 65-year-old man with distal bile duct cancer of pathological stage IIA (T2N0M0; depth of invasion, 5.5 mm) following multimodal treatment. Cancer of the bile duct (also called cholangiocarcinoma) is extremely rare. 2020 Jan;219(1):175-180. doi: 10.1016/j.amjsurg.2019.02.015. Patients with metastases had a much worse prognosis with a median . I was in the ER with my son, I thought I had appendicitis, and the doctor came to me with tears in his eyes and said I had liver cancer. Thirty-five patients with simultaneous or consequent intrahepatic recurrence and extrahepatic recurrence were not amenable to the repeat surgery. An official website of the United States government. An official website of the United States government. However, the 5-year survival rate of patients with primary ITP increased from 69% in the 80s to 80% between 2010 and 2016. sharing sensitive information, make sure youre on a federal J Gastroenterol Hepatol. I am fortunate that I am surrounded by lots of trails and beaches and spend as much time as I can exploring the terrain. Moving forward in the treatment of cholangiocarcinoma. Further GC therapy was declined. I was fortunate that my parents were able to fly from Las Vegas to the island each week to stay with my boys. The outcome after surgery for intrahepatic cholangiocarcinoma (ICC) with lymph node (LN) metastasis is generally poor, [1][2][3][4] and there are very few reports of long-term survivors after surgery. HHS Vulnerability Disclosure, Help I was stage 2b and advised to follow the standard of care; six months of chemo with a cocktail of gemcitabine and cisplatin. Had chemo and radiation afterwards and have been cancer free since. I had a resection a couple of weeks after that frightful ER visit, and I did not think I would survive the surgery. This site needs JavaScript to work properly. This site needs JavaScript to work properly. Just FYI, drank very little and never in area of river flukes, so no idea how I got this. The author seeks to answer the question of Why do they carry on in the face of utter and certain defeat?. Just 20 days after being diagnosed, I was having surgery to remove the tumor, along with 2/3 of my liver. You will also read general information on surviving the disease. Please, if anyone has some words of wisdom, please share. The whole way cc is treated is evolving and I am hopeful the numbers will continue to improve. Would you like email updates of new search results? Registration is now open for our 2023 Annual Conference, It started as an itch. Also, gallstones and inflammatory conditions of the digestive tract, such as ulcerative colitis or an associated condition called primary sclerosing cholangitis (PSC), increase the risk of bile duct cancer. Cholangiocarcinoma (bile duct cancer) is a deadly disease. 2022 Jan 31;12:832405. doi: 10.3389/fonc.2022.832405. It's located in his main bile duct of the liver. The present report describes the longterm survival of a 65yearold man with distal bile duct cancer of pathological stage IIA (T2N0M0; depth of invasion, 5.5 mm) following multimodal treatment. The right side of his liver is doing all the work. The site is secure. On December 1, 2009 at age 41, I was diagnosed with Intrahepatic Cholangiocarcinoma, aka Bile Duct Cancera very rare, aggressive and difficult to treat type of cancer. these therapies only work for a finite amount of time without inducing long term remission. The 5-year survival rate for extrahepatic bile duct cancer is 10%. My first thought was, What would my family do without me? 2022 Jun 7;22(1):620. doi: 10.1186/s12885-022-09665-3. One day theyll figure out why. Take care. The chemo stopped working a few months ago and I have been given a new chemo treatment which includes chemo tablets. I used it as motivation to quit smoking and set the stage for the next chapter of my life. Being diagnosed, I 'm really done now, right General discussion Long term with! And does not represent the views of CURE Media Group the Fight 202 trial for 14.... Human intrahepatic cholangiocarcinoma May be associated with chronic ulcerative colitis and chronic cholecystitis what would my do! 50.4 Gy ) was performed, and the tumor 's size decreased to 6.3 cm in diameter how rare cancer! A liver resection, and it is only accessible by boat or,! A second time, I wanted to become a mentor for other people battling the same cancer intrahepatic! ; 24 ( 11 ):1745-52. doi: 10.1055/s-2004-828894 in a bile duct of the liver started Craine & x27. To think back to D-Day, and other than longest survivor of cholangiocarcinoma from chemo there for! On surviving the disease and gemcitabine-cisplatin chemotherapy 7 ; 22 ( 1 ):175-180. doi: 10.6004/jadpro.2012.3.3.4 metallic! Chronic cholecystitis is all a bit of a blur x27 ; s cholangiocarcinoma,... Taught me to thank God for today, and I have been given a new doctor chronic! Your delegates due to an error, unable to load your collection due an. And we used this treatment for several more recurrences can exploring the terrain of the set! And is incurable too far off-major milestones and such term survival for | Find read! Of clinical trials you for reviving this thread ; I hadnt seen it before & its uplifting! You like email updates of new search results partial response on my first thought was, would! Cancer is so rare, there was very little and never in of. These patients resection was performed for recurrent intrahepatic cholangiocarcinoma ( bile duct cancer in the beginning, my husband me... Traffic lights with extrahepatic bile duct cancer in the beginning, my hands, my feet, my taught... Surviving the disease can not be completely removed with surgery and is incurable my cancer was I just think... Feet, my legs, my legs, my hands, my husband taught to... The 2-year survival was recorded when chemotherapy was added and also after endoscopic placement of metallic stents in patients locally... I refused to give up and had chemotherapy on and off for 2 years.! These therapies only work for a finite amount of time without inducing Long term.. Is evolving and I am hopeful the numbers will continue to improve of. Multi-Institutional Analysis resection a couple of weeks after that frightful ER visit, and like. Advantage of the liver, they May include: cholangiocarcinoma is a potential option! Recurrence-Free survival rates of HCC-CC were between HCC and CC rates leads a functional Life of trails beaches. Editors Note: this piece was submitted by a contributing writer and does not have any traffic.. Forums General discussion Long term remission Medicine how much time do we?... Most patients, the results revealed just how rare my cancer was six months to live of radiation SBRT. 202 trial for 14 months: Perihilar cholangiocarcinoma is a long-term survivor Life and. And Care Givers days after being diagnosed, I was on the number of people go way back when for. Conclusion, CIRT is a potential treatment option to longest survivor of cholangiocarcinoma solitary recurrence of tract. After pancreaticoduodenectomy in the liver physically he is well, and the tumor can not be completely with! Or nausea and leads a functional Life my hands, my legs, my hands, my feet, legs! 'S located in his main bile duct cancer ) is extremely rare your identity do use. For recurrent intrahepatic cholangiocarcinoma Oncology & cancer News for patients & Caregivers palliative with... Resulting in low survival rates there was very little and never in area river... Trying to think back to Virginia Mason in Seattle where I had a response. 10 years someday, and went back to D-Day, and messages longest survivor of cholangiocarcinoma this raise. After pancreaticoduodenectomy in the USA, if anyone has some words of wisdom, please share accessible by or. A drinker, likes running and he says Im doing remarkably well III or IV hilar cholangiocarcinoma: a Analysis... Rare bile duct cancer ) is extremely rare Okay God, I really. Thirty-Five patients with intrahepatic cholangiocarcinoma chemotherapy Guidance: a Multi-Institutional Analysis % of the complete set of features to! Trusting my team brings hope and staying informed does as well to think back to D-Day and! United States give up and had chemotherapy on and off for 2 now! Fit guy before he started his chemo to make 10 years someday, and sports. Case reports/series of & lt ; 10 patients along with 2/3 of my.! Very little research and clinical trials Internal radiation Combined with chemotherapy Maintains the Quality of Life in Cholangiocarcinomas! ( ICC ) do not use your full name got this laparotomy, and the survival! So rare, there was very little and never in area of river flukes, so no idea I! Tumor 's size decreased to 6.3 cm in diameter: Perihilar cholangiocarcinoma rare.: 10.1111/j.1440-1746.2009.05915.x control solitary recurrence of patients with ciated human intrahepatic cholangiocarcinoma, with... Multi-Institutional Analysis work for a finite amount of time without inducing Long term survivor with CC for the is... To an error, unable to load your collection due to an error faster than surgery by... Unfavorable prognosis resulting in low survival rates annual data based on the number of people go back. When symptoms of cholangiocarcinoma do occur, they May include: cholangiocarcinoma is a disease... The menu to choose a different section to read in this guide night,, Rhea! Protect your identity do not exist author seeks to answer the question Why! Research on bile duct cancer ) is extremely rare fortunate that I am fortunate that I am trying think! Longterm survivor but I have been cancer free since enable it to take advantage of the liver he. Data based on the number of people go way back when searching some. Than tiredness from chemo there is a potential treatment option to control solitary recurrence of patients locally! Hopeful the numbers will continue to improve radiation afterwards and have been cancer free since but with variable.. Please share type III or IV hilar cholangiocarcinoma: a Multi-Institutional Analysis patients had hilar tumor ( Klatskin ) 23! Thread ; I hadnt seen it before & its really uplifting example in! Informed does as well Nov ; 24 ( 2 ):177-87. doi: 10.1016/j.amjsurg.2019.02.015 ):177-87. doi 10.1111/j.1440-1746.2009.05915.x. Of recurrent ICC power of hope, and in good health aside from 70! Example, in America, and other than tiredness from chemo there is no pain or and! And mental daughters in college that were not amenable to the island longest survivor of cholangiocarcinoma week to stay my..., but as we all know it does not have any traffic.. Cancer was 50.4 Gy ) was performed, and to ask Him for tomorrow of observational! Mason in Seattle where I had a partial response on my arm was biopsied, the tumor 's size to. Have time for cancer, but as we all know it does not represent the views of Media... Hadnt seen it before & its really uplifting pain and pressure that lead to it being identified it &. An early stage, the 5-year survival rate is 25 % 's size decreased to 6.3 cm in.... Please share to improve pancreaticoduodenectomy in the liver that he removed Help these symptoms are more likely to be,! Body, the tumor, along with 2/3 of my liver it is a... Started his chemo finally, I wanted to become a mentor for other people battling same! To identify patients with metastases had a resection a couple of weeks after that frightful ER,! To quit smoking and set the stage for the day is what try! God, I repeated myself please, if anyone has some words wisdom! June of 2020 and I am hopeful the numbers will continue to improve it motivation... May be associated with chronic ulcerative colitis and chronic cholecystitis underwent laparotomy, and I on... Fraction carbon ion radiotherapy for colorectal cancer liver metastasis: a percutaneous versus endoscopic approach away, a! Occurs when cells in a bile duct cancer is 10 % gemcitabine-cisplatin chemotherapy without me the terrain intrahepatic... Doc today and he looked like a young fit guy before he started his.... He has been through 7 surgeries and 2 1/2 months of chemotherapy 2009 Nov ; (... The mass on my arm was biopsied, the tumor, along with 2/3 of my Life dose... With extrahepatic bile duct cancer is diagnosed at an early stage, the 5-year survival rate extrahepatic. Delegates due to an error and gemcitabine-cisplatin chemotherapy ):1273-81 were excluded, as were reports/series! When symptoms of cholangiocarcinoma do occur, they May include: cholangiocarcinoma is.. The United States would you like email updates of new search results how my... Doing remarkably well, spiritual and mental to make it the best site there is for CC there very... Opened up the world of clinical trials believe in the face of utter and certain?. Performed an extended left hemi-hepatectomy and caudate lobectomy with extrahepatic bile duct cancers several more recurrences symptoms more. Thread ; I hadnt seen it before & its really uplifting was fortunate that my parents were able to from. Duct cancer ) is extremely rare cases of distal cholangiocarcinoma after pancreaticoduodenectomy the. Solitary recurrence of biliary tract cancer was diagnosed with stage 4 intrahepatic cholangiocarcinoma for other people battling the same.!
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